By Akena Martin
Wednesday, 30 October 2024: In a significant initiative aimed at addressing sickle cell disease, the Government of Uganda, in collaboration with the Bristol Myers Foundation and Texas Children’s Hospital, officially launched a comprehensive program. The program is designed to enhance healthcare services, raise awareness, and provide training for healthcare professionals.
Dr. Diana Atwine, the Permanent Secretary in the Ministry of Health and a distinguished health advocate, articulated the necessity of prevention through awareness and education. She remarked, “Sickle cell disease is an inherited disorder, not a curse. It is imperative that we break the silence surrounding this condition and work collectively to prevent further suffering among children.”
Catherine Grimes, a representative of the Bristol Myers Foundation, underscored the organisation’s dedication to addressing overlooked health issues in Africa. She stated, “We are honoured to partner with Uganda’s leadership in our efforts to combat sickle cell disease and to foster a brighter future for affected children.”
Dr. Robert Ssentongo, the Director of Kayunga Regional Referral Hospital, shared insights into the hospital’s accomplishments and the challenges it faces in serving a population of 3.5 million, which includes 500 registered sickle cell patients.
Hon. Joyce Bagala affirmed the government’s ongoing support, acknowledging the essential role that leadership plays in mobilising resources and enhancing awareness.
Program Objectives
- Improve access to hydroxyurea, a vital medication for managing sickle cell disease.
- Provide comprehensive training for healthcare workers and specialists.
- Establish a continent-wide network of care to support affected individuals.
This initiative represents a collaborative effort to enhance the quality of care for individuals living with sickle cell disease in Uganda and beyond.
The writer is a communications officer at the Government Citizen Interaction Centre (GCIC).
